Alzheimer’s Disease — Caregiver Resources
I have a booklet, In It Together, written by Danielle Ripich, Ph.D. It was published by a pharmaceutical company in 2005. Dr. Ripich is the dean of the College of Health Professions of The Medical University of South Carolina. Her FOCUSED program to train caregivers of people with Alzheimer’s disease received a major award from the American Society on Aging.
I don’t know where you can get a copy of this booklet, but it contained a list of caregiver resources that I wanted to share with you. Some you’re definitely aware of, but others may be new to you.
The Alzheimer’s Association
A national network of chapters dedicated to advancing research and providing education and support for patients and families.
1.800.272.3900
TDD: 1.312.335.8882
www.alz.org
e-mail: info@alz.org
Alzheimer’s Disease Education and Referral Center (ADEAR)
A service of the National Institute on Aging (NIA) that stives to be a current, comprehensive, unbiased source of information about Alzheimer’s disease.
1.800.438.4380
TDD: 1.301.495.3311
www.alzheimers.org
e-mail: adear@alzheimers.org
Alzheimer’s Foundation of America
A nonprofit organization dedicated to optimal care and support through local member organizations.
1.866.AFA.8484 (1.866.232.8484)
www.alzfdn.org
e-mail: info@alzfdn.org
The Alzheimer’s Store
A one-stop source for products for people with Alzheimer’s disease and those caring for them.
1.800.752.3238
www.alzstore.com
e-mail:cs@alzstore.com
Association for Driver Rehabilitation Specialists (ADED)
A nonprofit association that helps caregivers determine whether the person with Alzheimer’s disease should be allowed to drive.
1.800.290.2344
1.318.257.5055
www.aded.net
Caregivers World, Inc.
Products to help improve the quality of life for both the caregiver and the care recipient.
1.800.239.4116
www.caregiversworld.com
e-mail: sales@caregiversworld.com
Children of Aging Parents
A nonprofit, charitable organization that strives to assist caregivers of the elderly or chronically ill with information, referrals, and support.
1.800.227.7294
www.caps4caregivers.org
e-mail: info@caps4caregivers.org
Eldercare Locator
A national, toll-free, directory assistance public service of the U.S. Administration on Aging to help people locate services for the aging in every community throughout the United States.
1.800.677.1116
www.eldercare.gov
Family Caregiver Alliance
A community-based nonprofit organization that addresses the needs of caregivers through national, state, and local programs providing education, services, research, and advocacy.
1.415.434.3388
www.caregiver.org
e-mail: info@caregiver.org
National Academy of Elder Law Attorneys
A nonprofit association providing information and resources to attorneys specializing in legal services to the elderly and disabled. They also provide an elder attorney locator.
1.520.881.4005
www.naela.com
National Association of Professional Geriatric Care Managers
A nonprofit, professional organization working to ensure high-quality eldercare.
1.520.881.8008
www.caremanager.org
National Institute on Aging (National Institutes of Health)
Alzheimer’s Disease Information
1.800.438.4380
Age-Related Publications
1.800.222.2225
www.nia.nih.gov
Safe Return
A joint program of the Alzheimer’s Association and the National Center for Missing Persons; a person who has dementia is fitted with a bracelet showing his/her name, the registered caregiver’s name, and the toll-free number for Alzheimer’s Association Safe Return.
1.888.572.8566
www.alz.org/services/safereturn.asp
United States Social Security Administration
Government agency responsible for retirement payments, Medicare, and disability benefits, as well as other benefits. Information also available in Spanish.
1.800.772.1213
( 7 AM to 7 PM, Monday through Friday)
TTY number: 1.800.325.0778
(7 AM to 7 PM, Monday through Friday)
www.ssa.gov











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