The Alzheimer’s Association issued this today and I received it in an e-mail. If you did not receive it, I am reproducing it here. It is indeed breaking news: Major Advocacy Victory for People with Younger-Onset Alzheimer’s Disease.
The Social Security Administration (SSA) announced today they have added early-onset/younger onset Alzheimer’s to the list of conditions under its Compassionate Allowance Initiative, giving those with the disease expedited access to Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI). The Alzheimer’s Association, a longtime advocate for those with early-onset Alzheimer’s, has played an integral role in this movement to reduce the length of disability decision process.
Sign our Thank You Card to SSA.
This is a victory for individuals with early-onset Alzheimer’s disease and is a direct result of the hard work done by Alzheimer’s Association advocates. Since 2003, the Alzheimer’s Association has been working on behalf of individuals with early-onset Alzheimer’s disease to improve the Social Security disability process. Learn more about our advocacy work.
Many people with early-onset Alzheimer’s or other dementias have faced challenges when applying for Social Security benefits. Individuals are often initially denied but usually win benefits on appeal, a process which can take several years.
Last summer SSA hosted a hearing in Chicago to examine access to social security disability benefits for people with early-onset Alzheimer’s disease and related dementias through its Compassionate Allowances Initiative.
Over 70 advocates with Alzheimer’s disease, their families and caregivers attended the hearing to hear testimony from people living with Alzheimer’s as well as medical experts. I was honored to be able to testify as well. Since that hearing, over 600 advocates from across the country submitted written testimony and personal stories of their experiences and challenges
Alzheimer’s Association advocates helped SSA understand the impact of early-onset Alzheimer’s disease on individuals and their families and helped influence their decision to add early-onset Alzheimer’s disease and related dementias to their list of Compassionate Allowances. Without advocates just like YOU, this wouldn’t have been possible.
Please join us in thanking the SSA for their decision.
Thank you for using your VOICE.
Sincerely,
Harry Johns
President and CEO
PS: Many of you know others who have been affected by this disease. Please forward this message onto them so they can join us in thanking SSA and learn more.
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